REVIEW OF 103 SWEDISH HEALTHCARE QUALITY REGISTERS
In the past two decades an increasing number of nationwide, mostly physicianinitiated,
Healthcare Quality Registries (QRs) focusing on specific disorders have been
developed. This article describes the purpose, organisation, variables, coverage,
completeness, and quality of 103 Swedish QRs.
METHODS:
In March-September 2013, we examined the 2012 applications of 103 QRs to the
Swedish Association of Local Authorities and Regions (SALAR), as well as studying
annual reports from the same QRs. After an initial data abstraction, the coordinator of
each QR was contacted at least twice in June-October 2013 and asked to confirm the
veracity of the data retrieved from the applications and reports.
RESULTS:
About 60% of the QRs covered ≥80% of their target population (completeness). Data recorded in Swedish
QRs include aspects of management (means of diagnosis, clinical characteristics of
the disease, treatment, and lead times). In addition, some QRs retrieve data on selfreported
quality of life (EQ5D, SF-36, and disease-specific measures), lifestyle
(smoking) and general health status (WHO performance status, body mass index, and
blood pressure).
CONCLUSIONS:
In conclusion, most Swedish QRs have a high completeness. The detailed clinical data
available in the QRs complement information from government-administered registries
and provide an important source not only for assessment and development of quality of
care but also for research studies.